I'm Just That Special

Last week I got yet another diagnosis that sucks. She tested me for such rare things since I've had so many miscarriages and nobody else had tested me. My lupus antibodies test came back positive and it looks like I have thrombophlia. We are still waiting for a couple more tests, but I'm hoping this is the end of it. Apparently I have autoimmune diseases on top of autoimmune diseases. Isn't that fab? Oh and apparently ivf and raised estrogen levels could have killed me with blood clots so at least i made it out alive. That's something.

The good news is that I can stay pregnant with treatment! It will just require lots of appointments and shots of heparin. That's in addition to all the labs I'll need for my thyroid. I'll essentially live at the doctor's office for my whole pregnancy. But, I don't care. Whatever it takes. Just leave it to me to have that "it's really rare but we should test it to cover our bases" disease.

Now we just have to get my body under control and save up some money because this shit is expensive! The chromosome testing alone was $2000! I have no idea what insurance will cover as far as the autoimmune testing, and I know they won't cover the saline sono. It's looking like we will owe around $4000 just for testing. Then we will either have a frozen or fresh ivf to pay for too. A frozen would be around $5000, and a fresh would be around $15,000 with meds. Ugh!! I would love to get off this roller coaster soon! 

In better news, my AMH was 8! So I have lots of eggs! I have to wait for my cycle to start before I can do my FSH and other 3 day labs. Then we will meet with her again and make a treatment plan.